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ADULT GUIDE TO CYSTIC FIBROSIS

 

The face of cystic fibrosis is changing as adults with CF now outnumber children with the disease. As more people with CF reach adulthood and live independently, their needs change. The Adult Guide to Cystic Fibrosis, developed by the Cystic Fibrosis Foundation in the US, is designed as a reference on many aspects of adult life with CF. 

Being an adult with cystic fibrosis brings on some quite distinct challenges. The guide is a resource to help you manage your life and draws on the expertise of professionals from adult CF programs, the Cystic Fibrosis Foundation, and patients living with CF. Topics discussed in the guide include:

  • Basics of Lung Care
  • Sinusitis and CF
  • Nontuberculous Mycobacteria (NTM)
  • Lung Transplantation
  • Basics of the Digestive Tract
  • Distal Intestinal Obstructive Syndrome (DIOS)
  • Gastroesophageal Reflux in CF
  • Improving Nutrition With Tube Feedings
  • CF-Related Diabetes (CFRD)
  • Basics of Infection Control
  • Vascular Access Devices (a.k.a. PICCs/Ports)
  • Anxiety and Depression
  • Basics of CF and Male Infertility
  • Birth Control for Women With CF
  • Pregnancy in CF
  • Menopause in CF
  • Day-to-Day Time Management
  • Eating on the Go
  • Exercise With CF
  • Having a Fabulous Social Life 
  • Traveling With CF
  • Parenting as an Adult With CF
  • Finding Community Support
  • Managing Home Care
  • Changing Care Centers
  • Participating in CF Clinical Trials

The Adult Guide to Cystic Fibrosis provides insights and answers to adults, teenagers preparing to transition to an adult CF program, parents of children looking ahead, or friends or relatives of someone with CF.

The guide (available as a PDF version in English) can be downloaded from the Cystic Fibrosis Foundation website at the link below:

https://www.cff.org/Life-With-CF/Daily-Life/Adult-Guide-to-CF.pdf

 

About the Cystic Fibrosis Foundation

The CF Foundation is a nonprofit organization based in Bethesda (US), and its activity is dedicated to searching the cure for cystic fibrosis. Many CF-specific medications available today were made possible with the foundation’s financial support.
Source: Cystic Fibrosis Foundation – www.cff.org

 

Source: Cystic Fibrosis Foundation – www.cff.org